Training Lay Trainers:
A Strategy To Disseminate Care Coordination Skills to Families of CYSHCN

Project Overview

7th Funding Cycle Development Award
     Project Start Date: 1/1/2012
     Project End Date: 12/31/2013 - No Cost Extension Through: 4/30/2014

Project Goal Statement: To train a cadre of Lay Trainers who are themselves parents of children and youth with special health care needs (CYSHCN) to teach care coordination skills and behaviors to other families of CYSHCN using a recently developed care coordination curriculum.

Award Amount: $200,000

Community Partner(s):
Primary Community Partner: Sharon Fleischfresser, Wisconsin Department of Health Services, Children and Youth with Special Health Care Needs Program
Additional community partner organization names:

  • Children's Hospital of Wisconsin-Special Needs Program
  • University of Wisconsin-Milwaukee School of Education
  • Wisconsin Department of Children and Families-Bureau of Milwaukee Child Welfare

Academic Partner:
Primary Academic Partner: John Gordon, MD, Department of Pediatrics

Project Progress Summary Reports:
     Project Progress Report Summary 1/1/2012 - 8/31/2012  
     Project Progress Report Summary 9/1/2012 - 8/31/2013
     Project Final Report Summary

Affiliated Web Pages:
     Children's Hospital of Wisconsin-Special Needs Program
     University of Wisconsin-Milwaukee School of Education
     Wisconsin Department of Children and Families-Bureau of Milwaukee Child Welfare    

Project Dissemination Efforts (as reported by the project partners)

  • Outreach Materials / Events
    • Developed Training Manual for teaching Bridge to Independence curriculum to Lay Trainers, including handouts, PowerPoint presentations, and scripts for partners teaching Lay Trainers
    • Radio interview with WUWM program UWM Today (February 2013)
    • Translated the Bridge to Independence curriculum from English to Spanish
    • Presentation of the curriculum to 30 Birth-to-Three, Head Start and other community agency providers at Indianhead Community Action Agency (January 2014)
  • Presentations
    • Presentation at the Circles of Life Conference to families of CYSHCN and providers (April 2013)
    • Presentation at the HWPP CEnR Conference (September 2013)
    • Symposium presentation at the American Academy of Cerebral Palsy and Developmental Medicine conference (October 2013)
    • Two presentations at the American Association for Adult and Continuing Education conference (November 2013)
  • Publications
    • Paper accepted in the Adult Learning Journal titled “Learning How to Teach: Relationship Between Life Experience and Learning”
Contact Us

Advancing a Healthier Wisconsin Endowment Research and Education Program (REP)
P: 414.955.8075 | E: ahw@mcw.edu

Advancing a Healthier Wisconsin Endowment Healthier Wisconsin Partnership Program (HWPP)
P: 414.955.4350 | E: healthierwisconsin@mcw.edu

Medical College of Wisconsin
8701 Watertown Plank Road
Milwaukee, WI 53226
414-955-8296
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